To see all protocols that comply with the WHO Essential Medicine List 
This fact sheet contains general information about Neurofibromatosis type 1. Each person should be referred to a genetic service for further information and advice.

Key Points

  • People with NF1 have an increased chance of developing benign (non-cancerous) nerve tumours (neurofibromas).
  • People with NF1 have a slightly increased chance of developing both benign and malignant (cancerous) tumours of the brain, spinal cord and nerves behind the eye.
  • Women with NF1 have an increased chance of developing breast cancer.
  • Family members (including children) can be referred to a genetic service where experts can provide information, advice and support about their chance of developing cancer and the option of genetic testing.

This cancer genetics fact sheet is a guide only and cannot cover every possible situation. The information provided is not intended to replace discussion with a health professional, and should not be interpreted as medical advice. Use of this document is subject to eviQ's disclaimer available at  

Send feedback for this page

First approved:
Review due:

The currency of this information is guaranteed only up until the date of printing, for any updates please check:

08 Aug 2020