1. Home
  2. Cancer genetics
  3. Resources

Resources to assist in the care of transgender individuals referred to a clinical genetics service or familial cancer centre

On this page
Expand all Collapse all Back to top
The following resources have been collated to assist in providing individualised patient-centred care to transgender individuals referred to a clinical genetics service or familial cancer centre for assessment and counselling regarding a personal and/or family history of cancer. It is not intended to be a comprehensive guide and care should be tailored to the unique and often complex circumstances of the referred individual.

Guidelines

  • Guidelines for the Primary and Gender-Affirming Care of Transgender and Gender Nonbinary People – UCSF Transgender Care – transcare.ucsf.edu/guidelines

Patient resources

Other resources

Training for healthcare professionals and organisations

Useful articles

  • Barnes, H., E. Morris and J. Austin. 2020. "Trans‐inclusive genetic counselling services: Recommendations from members of the transgender and non‐binary community." J Genet Couns 29(3):423–434. Abstract
  • Bennett, R.l., K.S. French, R.G. Resta and J. Austin. 2022. "Practice resource-focused revision: Standardized pedigree nomenclature update centered on sex and gender inclusivity: A practice resource of the National Society of Genetic Counselors" Journal of Genetic Counseling, 31(6): 1238-1248. Abstract
  • De Blok, C.J.M., C.M. Wiepjes, N.M. Nota, et al. 2019. "Breast cancer risk in transgender people receiving hormone treatment: nationwide cohort study in the Netherlands." BMJ 365:l1652. Abstract
  • De Blok, C.J.M., K.M.A. Dreijerink, and M. den Heijer. 2019. "Cancer Risk in Transgender People." Endocrinol Metab Clin North Am. 48(2):441-452. Abstract
  • De Nie, I., C.J.M. de Blok, T.M. van der Sluis, et al. 2020. "Prostate Cancer Incidence under Androgen Deprivation: Nationwide Cohort Study in Trans Women Receiving Hormone Treatment." J Clin Endocrinol Metab 105(9):e3293–e3299. Abstract
  • Lewis, E.B., B.Vincent, A. Brett, et al. 2017. "I am your trans patient." BMJ 357:j2963. Abstract
  • Rolle, L., K. Zayhowski, D. Koeller, et al. (2022). "Transgender patients’ perspectives on their cancer genetic counseling experiences." Journal of Genetic Counseling 31(3): 781-791. Abstract
  • Sutherland, N., W. Espinel, M. Grotzke, et al. 2020. "Unanswered Questions: Hereditary breast and gynecological cancer risk assessment in transgender adolescents and young adults." J Genet Couns. 29(4):625-633. Abstract
  • Taylor, E.T. and M.K. Bryson. 2016. "Cancer’s Margins: Trans* and Gender Nonconforming People’s Access to Knowledge, Experiences of Cancer Health, and Decision-Making." LGBT Health 3(1):79-89. Abstract

Version 2

Date  Summary of changes
03/02/2023

Resource document reviewed electronically by Cancer genetics reference committee. Approved for publication with the following changes made:

  • Patient resources: link to 'Counseling service' added
  • Other resources: link to 'Queering Cancer Canada', 'Rainbow families' and 'The Gender Unicorn' added
  • Training for health professionals and organisations: section added to document
  • Useful articles: new journal articles (Bennett et al. and Rolle et al.) added

Version increased to V.2. Review in 2 years.
05/09/2023 Resource link for "The Genderbread Person" removed as now replaced with "Gender Unicorn". 

Version 1

Date Summary of changes
17/06/2021 New resource document developed and discussed at the October 2020 cancer genetics reference committee meeting. Discussions continued via email. Document approved for publication as V.1. Review in 1 year.
16/08/2022 "Rainbow Health Victoria" changed to "Rainbow Health Australia"

While eviQ endeavours to link to reliable sources that provide accurate information, eviQ and the Cancer Institute NSW do not endorse or accept responsibility for the accuracy, currency, reliability or correctness of the content of linked external information sources. Use is subject to eviQ’s disclaimer available at www.eviQ.org.au.

Send feedback for this page

First approved:
Last reviewed:
Review due:

The currency of this information is guaranteed only up until the date of printing, for any updates please check:

https://www.eviq.org.au/p/3956

13 Oct 2024